January Plans

Nurse Kelly called from Iowa City. Justin has an information meeting/appointment on January 7. They will do an MRI, CT scan, blood tests and other tests to be able to start radiation a few days later. We will get lots of information that day about what will happen, what to expect, and the schedule Justin will follow.

Justin is on two anti-seizure meds, but still has seizure activity. It looks different this time and feels different to him. Now it looks and feels like dizzy spells, but he is still out of it and he still isn't sure what is going on at the time. He has had a few close calls dropping things, losing his balance and even falling.

I asked about Disability, since Justin cannot work now, but he was turned down. He does not qualify. I was angry at first because I can't imagine how this does not qualify as a disability. An incurable brain tumor with the patient on radiation? But the social worker at the hospital said that a person must be disabled a whole year before they qualify. OK, I understand now. So it looks as if there will be no help in that direction.

We will be working to get ahead before the radiation starts. I am looking for a temporary 2nd job, gathering things to sell on ebay or Craigslist, and cutting every corner I can. Hopefully I can get enough to pay some of the bills while we are in Iowa City. My bosses had a meeting today, and one of the things on the agenda is how my employment and insurance will work through this leave of absence. I appreciate that they are willing to let me have the time off. That is one less thing to worry about.

Keep praying, Friend. We rely on your prayers and thank you for them.