Whenever we go to the hospital, Justin is seen by several doctors. First the nurse or assistant, then a resident doctor or two, then his "real" doctor. Usually by the time we get to see his regular doctor, we have figured out exactly what we want to say to him, and what questions to ask. The nurse and the residents spend lots of time asking questions, giving answers, and just making sure everything is OK.
Monday morning we left home at 4:45 am so that he would be there for his 7:00 MRI. The MRI went well and was fast enough that we could eat breakfast in the cafeteria before seeing the doctors.
The nurse went through some neuro testing and asked a bunch of questions. Then the resident came in and asked about the same questions and did some more tests. I got to ask him all of the 15 questions our family had written down. He answered some and then told us to ask the doctor the rest. One thing that he DID answer for us that encouraged us so much, was about the seizure activity. We pretty well knew that the small daytime episodes were seizures, but he confirmed it. I asked him if the seizures were controlled to the best of our ability and he said, "No. Having NO seizures means we are controlling them." Wow. That was what we needed to hear! I believe it was the greatest thing we learned the whole time we were there. Knowing that they are working to make sure he doesn't have ANY seizures made a big difference in Justin's demeanor right away. He had a whole new attitude on life!
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