I woke up this morning with that awful, familiar sound. Justin was having a seizure. This one was pretty bad, and I felt so sad for him. He didn't breathe for quite a while--maybe 30-45 seconds (it just SEEMS like an hour!). He came out of it in a little while and we talked about it. He was VERY disappointed when I told him that we must go back to the hospital. What a discouragement that the medicine doesn't seem to be working like we thought it should.
We got to the hospital and got right in Triage. That was different. And they called him for the pretesting right away, which was nice. And they called him into the ER quickly. That just does not happen. Well, that was where the good ended. They tried again to put in an IV, and have him put on a gown. He again turned them down, but they still put the pads up on the gurney in the room. The doctor was a new one, and didn't really know what to do. We had to tell him the whole story; what is going on, who to call, what to ask, etc. He left to talk to his supervisor. When they came back, we had to go through the whole thing again. "We are not here for treatment, just for documentation that he had another seizure. Iowa City will want to know."
So off they went again. In a long time, the younger doctor came back and said they couldn't reach Justin's doctor, so they talked to "someone on call in another department there," who told them to put Justin on an ambulance for Iowa City. They said he needed to be seen there. I said "no, that is not necessary" and the doctor looked at me like I was putting my child's life in extreme danger. I explained that Justin has only had about 7 seizures since April, all occurring in his sleep in the early morning, and all weeks apart. We were just at Broadlawns for documentation. The doctor said I might have to sign a paper saying that I refused the ambulance for Justin and I said that was fine. So off the doctor went, again.
When he returned, he evidently had read through Justin's file and he was much more relaxed. He said they were fine with discharging him. Good.
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